Showing posts with label to know me. Show all posts
Showing posts with label to know me. Show all posts

4/12/2016

Hurricanes and other emotional disasters


In the weeks and months following my ectopic pregnancy I was plagued with grief and sorrow and loss—but also, and unexpectedly, I was lost in confusion. Confusion in my faith and God and what I had always thought I'd known as "revelation" or "inspiration". In this state of confusion and fractured faith I also felt misguided, misled... a deep distrust settled over my shoulders and gripped me tightly. My world darkened as my trust faded. I'd always been told to trust in Christ, to trust in the Holy Spirit as it would guide me, light my mind with Heaven's view. Now I questioned those feelings I had thought had come from the Spirit, those feelings that led Jason and I down the path of a second round of IVF and ultimately nearly end my life. I went through each day numbly; the numbness a sort of protective coating for the doubt and pain that enveloped me, too poignant and fresh it was sure to draw blood. I could hear screaming in the quite of my mind. It was mine. My silent screaming. That too became numbing, like the hum of white noise.

How could something have felt so right? So good? How could we have felt so assured? How could we have trusted in a feeling so completely? How could I have believed so completely and felt life inside of me and fell in love so quickly? How could we feel as if we'd witnessed a miracle only to have it ripped from our fingers so aggressively, so harshly, so destructively?

With this nimbus cloud encircling my spirit I struggled to put one foot in front of the other and into our church building. Jason and I sat in our usual spot, surrounded by our usual church family. We were early. Our friend sat in the pew in front of us and turned around, chatted with us as we waited for the meeting to start. I don't recall how or why he started to tell his story, but it fell upon me like a rush of air, like a wave crashing onto a parched, dry shore.
He was talking about his job (emergency planning manager for Los Angeles County public health/emergency department) and where he'd gone to graduate school (New Orleans, LA). "You know it was funny, neither of us wanted to go to Louisiana. We both hate humidity, we both don't like being too hot, we don't love barbecue or southern food. We couldn't believe it when we felt the prompting to go there for school. But it was so strong we knew we had to go, even if we didn't know why." It had felt so right and so clear and so good to them. Our friend and his wife packed up their new, little family and headed for Louisiana... then August 2005 came, as did Hurricane Katrina.
"The Lord didn't need me to go to grad–school in New Orleans. The Lord needed us to go through a hurricane."

The screaming in my head ceased. Silence. Some sort of understanding dawned, then deepened.

The Lord needed us to go through a hurricane.

It's funny how we, as humans, make all sorts of plans and time–lines for ourselves and our lives and our families. We map out exactly how we believe our lives should be and we feel so proud and sure of ourselves. And aren't we silly? We're not in charge here. Not really. God is over all. And what keeps me going, what keeps me hoping and believing and trusting, is knowing that He knows me. He knows me better than I know me. He loves me, better than I love me. I don't profess to know why things happen. I don't know why when we did IVF a third time last May we lost that sweet one too. I don't know! I wish I could, but maybe I don't get to yet. I know his plan for me has to be better than anything I could dream up for myself.
I have to believe this. I have to hang on to this. I have to know this truth.

He needed me to go through a hurricane. Ok. Done. Now what does He need me to do? Because I'm in. I'm all in.

3/29/2016

"Dear family of my angel donor..."


We woke early for an Easter sunrise, adopting a beautiful tradition from a beautiful friend, but there was something incredibly important and special about this specific Easter and this specific sunrise.
The clouds were socked in, it was misting throughout the wee hours of the morning, and the rain began to really come down. We all huddled under our umbrellas and our blankets. She used the same umbrella for protection on that rainy morning as I had used that sleepless night in 2012 in the waiting area during that nine hour surgery. We wondered if it all might be for not, the sky darkened in agreement. We wondered if we should just finish our hot chocolate, call it off, and hope for the possibility of a lovely sunset. We started sharing stories of other sunrises and sunsets, stories of Travis.
Then, almost imperceptibly, the rain was gone—it was all coming down, then it was gone, and it was the quietest change. It took several minutes before anyone noticed. Once our heads were freed from the umbrella's shelter we could see above us and out in the distance a few silver–linings scattered around the sky. We all felt happy with "seeing the silver–linings" and decided to just be grateful with that, then... gold! Bright, white, shining, gold burst through and between the thick clouds and gold fell on the hills around us and kissed our cheeks.

We gathered together to take it in, our breath taken by the sight. Now, it was time to listen.

A while ago Jason sent a letter "Dear family of my angel donor", then a few months later we received a message "I think my brother might be Jason's angel donor". Those two greetings are what catapulted us to this highly anticipated weekend, when Debbie and Amy and Dustin flew to Texas and we had the honor of meeting the newest members of our family.
It was as if we had known them forever, and we loved them and prayed for them before we ever knew their names. Over shared meals, through our adventures all around Sea World, riding in the car together, meeting atop our hill for the sunrise, and FaceTiming with our families, we came to know these lovely people and Travis Jericho Tillett.
Travis, a tall, blonde, entertaining, beautiful sixteen year–old boy who just got his learners permit. Who selected to be a donor without a second thought. He adored his mother, he called her Chap, he watched over her and she him and they were partners for each other. They went through life as soul–mates and were spontaneous together chasing the sea and the sunrise and the big, bright, full moon. He went out of his way to brighten and better the lives of all those around him. He knew just how to make his sister, he called her Sweetpea, laugh and laugh until she cried. He was thoughtful and driven and excited to get a job to buy a car and finally be finished with braces. He was on his way to school at SUN tech one morning, mid September 2012, when he was in a fatal car accident... only a couple days later we received The Call. There were beautiful lungs, perfect for Jason, ready for surgery. We would receive the sweetest, most selfless gift.

In the days preparing and throughout their trip, Debbie (Travis' mom), Amy (Travis' sister), and Dustin (Amy's son, Travis' nephew), experienced SO MANY tender mercies, so many miracles and signs along their way. From things small and simple as finding many pennies from Heaven when they reached their hotel room and even as they received their boarding passes to fly back to Pennsylvania—to a patient Jason had in his chair a few weeks ago, who just so happened to be head of admissions at Sea World, who told him they would be honored to host us with free admission for our special visit—to the clouds bursting open and the light reigning down on us for a moment so utterly personal and sweet it's nearly impossible to put into words.

Easter morning the air was thick and fragrant with fresh rain, our hearts were full and bursting with the sun shining around us, and Jason pulled his stethoscope from his pocket, Amy pulled hers from her purse.
Debbie slipped it into her ears, Jason guided her hand to his lungs. Amy readied herself as well. Jason took a long, deep breath. Debbie closed her eyes. Listening. "... ... ... ... Travis. ... It's Travis! There he is! Ohhhhh... ... it's Travis."

We all wept.






God was with us during our time together. God was with us throughout this tragic and terrible and beautiful and painful and miraculous journey that made our paths to cross. And I promise you God was with us on that hilltop hoping for the sun to rise. And I know that Travis was there too. I think Travis was pulling strings and walking along with us for his family's whole visit to Texas and I think he was glad we all finally found each other.

God is good. And Christ is Risen. And because of this we can all hope, we can all find joy, we can all try and love and look up and reach out to others and do our best through this walk of life. And after this mortal journey is through we can anticipate a glorious reunion in the end. Because of our Savior. Because of Him it can truly all be ok in the end.

Until then—Travis isn't gone. Travis is everywhere. And oh boy! Do we love him, and love those who love him.


"He lives on in others who now see the beauty of a sunset through his eyes, hear the coo of a child through his ears, breathe the breath of life through his lungs, and feel the pulse of life that lives on in his heart. Travis is no longer with us... He is now everywhere." –an excerpt from Travis' obituary, written by a close family friend


8/27/2014

"It's been a long year, and I'm finally ready to be here..."


"How have you been?" "How are you guys doing lately?" "Really. How are you guys doing? How's Jas?"

How are we doing? How much do you know? How much do you want to know? How much should I share? All of it? I'm not sure what to say...

"We're good. Jas is doing great, healthier than he has been in so many years."

On Feb 10, 2014 we lost a baby, and almost... me.

I remember looking up to the sky, seeing all the blue and the tops of palm trees and light brown roofing tiles, as firefighters raced me down the stairs outside our apartment. I was very worried that I was only in underwear under the green blanket covering my body—oh yeah, my body—it was continuing to writhe in mind–numbing pain. But also there was this state of resignation to the pain, like my threshold had been reached... Or maybe elevated—like a wave of exhausted, confused, adrenaline seeped through my veins and poured over my alarm cells, or whatever it is that tells your body it's filling up with blood. It was as if I wasn't in my body, and I really really wanted my thread–bare favorite tribal sweater. Delirium. Delirium plus pain.
Only minutes before, back up in our bedroom, these same firefighters could not find a pulse or blood pressure. Jason let them know I was just a day away from 7 weeks pregnant. The taller, bulkier EMT, before he even came to hover over me on the floor at the foot of our bed, stated loudly and matter-of-factly "Sounds like it might be ectopic pregnancy."
Once in the ambulance they continued to try to find pulse/blood pressure, with no luck. The siren reeled and I remember being incapable to keep myself from moaning over each bump... and there never was a bumpier ride than that one in the back of the ambulance, flying to the hospital. So many bumps. So many hands. So many heads and voices. So many pricks and sticks and stings from repeated attempts at starting an IV. Now, reflecting back logistically there were just two heads and four hands... oh but on that day, from where I lay, there were so many.
Jason passed a friend out on a walk with her son as he followed the rig in our car. The little boy was pointing and saying "Look mommy! Firetruck." Then our sweet friend spotted our car following behind the ambulance, Jas saw her confusion, panic. He shouted from the car "Geri's in there!" "What?! What can we do?!" "It's serious! Please pray!" and then we were gone. Turning out of our complex and speeding down the street.

This round of invitro fertilization was rocky. It was almost as if everything that could go wrong... did, totally did; making the already difficult journey, the White Cliffs of Dover of emotions and guarded optimism and the sea of needles and needles and suppositories and needles and waiting and holding breath, all of it, feel like trudging through waste–high molasses. The short story: A–fluid filled my ovaries after the extraction (brutal introduction to days of brain–melting pain that is Fluid Being Where Fluid Shouldn't Be—and then trying to drown myself with water and Gatorade and Vitamin Water to get the fluid out... ? This I'm still trying to understand. But I did it). B–They had to take from both testicles because the sperm count was very low, both doctors were nervous about the success of the outcome at this point. (C–Roughly four weeks after my emergency Jas would have one as well, one in which he almost lost his left testicle as it had swelled to triple its size, became rock hard, and inflamed with pain... you can ask him more about this issue at a later date... if you really want to. Spoiler: he didn't loose the whole testicle, just the epididymis.) We ended up with 5 viable embryos. Transferred two, froze three (that part was the best part).  D–After the transfer, we experienced another "low positive" and yet not as low as last time. This brought with it a current of old emotion and memories. I remember thinking it might have been better to have no positive at all, over the extra blood draws and the waiting and the not exhaling until the phone rings. And then there was the call and the levels had more than doubled. We were pregnant! "We were pregnant" with a million exclamation points! And also "We were pregnant" in a whisper, with a smile that held only half a heart and so much caution.

From the beginning we had tried to keep this as secret as possible. We thought it might be fun to surprise everyone with happy news. (Or that it might be better to privately grieve together, should there be the opposite.) We had our list written—all those we were excited to tell after our first ultrasound, coming up on Wednesday. It had been pushed back a week. I was already feeling very nauseous. And this strange sick feeling had made me so happy. To me it meant something was happening, someone was growing.

Then Monday morning came and Jason was taking a final exam. It was eight o'clock. I woke suddenly and clutching my lower abdomen. So much nauseous pain. I dropped my legs to the floor and staggered to the bathroom. I didn't know what to do—sit or kneel, sit or kneel? I sat and held the garbage in front of me. Nothing happened, but more pain, more intense. I knelt. I dry–heaved. I clumsily laid on the cold, three foot by four foot, bathroom floor. I pulled my knees closer to my body. I slowly crawled out of the bathroom and down the tiny hall (can I call it a hall?) until I collapsed by the kitchen. I whimpered and wretched because I was so so nauseous and so so weak and so close to the smell of the garbage can. Somehow, I'm not sure how, I found myself back in bed. I let myself fall in and out of half–sleep.
Then it was ten o'clock. Jason must be done, right? There were time limits on those tests, right? Feeling the last bits of lucidity escape me I fumbled with my phone and texted something about not feeling well and needing help. There was another hour left of the test, but for some reason Jas had been flying through the questions with ease. He hadn't turned his phone off before the exam (which was unusual) and he read my message. Something whispered it's urgency to him, he scribbled answers to the remaining few questions and ran from the room to his bike. Forgetting his white–coat, his keys in its pocket.
The door was locked when he tore up the stairs to our apartment. He knocked and pounded and rang the doorbell. I could hear the ringing and the pounding and I imagined myself getting up and opening the door—but I couldn't lift my head. My phone chimed, he had texted. Slowly and with so much concentration I turned my phone to the side and read "Locked. Can you come let me in?" I answered, although I don't quite remember typing, "I can't. I'm sorry."
And he was off—running across the complex, to the front office, and racing back up the stairs with the extra key. He bounded into the apartment; I was jostled from my half–slumber. He was talking too loudly, asking questions. "You're whiter than your pillow. Stay awake, ok. Nope—don't close your eyes." He was calling Dr. A (our fertility doc) and they were insisting I come in to their office... NOW. I couldn't imagine walking down the stairs and getting into the car. There was hardly strength to strength to register words, let alone respond. If I moved I wretched, or I needed to. Please can I close my eyes. I just need to rest. Please?
Jason tried to talk me into getting up, gently at first, then demanding we go. I said I would, I just needed to rest for a minute more. Just a few minutes more. He pulled a pair of shorts half way up my legs, the movement excruciating. I moaned and breathed, so shallowly.
By eleven thirty Jas had called the doctor's office again and they urged him to either get us in the car and on our way to their office, or call 911. He pulled his arms around me and sat me up. "We need to go, we need to go now. Here, let's get you sitting up. Can you–"
I woke feeling so comfortable, as if someone had found the reset button... and then came the pain, again. I was laying side–ways on our bed now, half on/half off.
"Geri? Geri. Hey, hey you." I nodded. "You passed out. I tried to get you to sit up and you passed out." He let me lay there a little bit longer, then tried to help me up again—slower this time. I remember standing, taking note that I really couldn't feel my feet on the floor. But ok. I just had to–
This time I woke on the floor at the foot of our bed. How did that happen? Why was I here? Reset. Jason's eyes were wide, his face pale. "I'm calling 911. Don't move. Don't try to get up." I began a feeble attempt at moving. Why was everything so... heavy? Why couldn't I move my arms? "But I need my sweater." Jason was already talking to dispatch. "My sweater, please can you get my hoodie?" Jason continued talking, suddenly, too soon, there were sirens. Desperation flooded me. Underwear! That's all I have on! My sweater! Please! My "sweater. I need it." Jason shook his head and said something about I didn't need it. I focused all my attention on insisting. He said he was getting a blanket.
Then there were firemen in our apartment, in our bedroom. Talking loudly and bluntly and saying the words "ectopic pregnancy"—words I had read about a few weeks before. I would need surgery. That's what I knew. That and something about a fallopian tube. "Can you roll to your side? Good. That's all we can do while we wait for the stretcher."
Jason was on the phone again, this time with our close friend/neighbor, who lived at the front of the complex and had heard the sirens and had a feeling they might be for us. "Aubrey. Hi. Yes. It's Geri. She's in a lot of pain, and weak. She's so pale, whiter than our sheets. She passed out twice. She seized the last time, threw up and stopped breathing, it was longer. They can't find a pulse or blood pressure. ...I don't know, maybe an ectopic pregnancy. We're getting her to the hospital. Pray. Please pray."

I had seized?

I was on a stretcher. I was in an ambulance. I was being lifted from the ambulance, then rolled into the ER. I lost more of myself. I remember seeing sky, then ceiling, then a dark room with a curtain and IV poles. I remember more poking and stinging, but duller, more fuzzy now.
Then there was a deep, insane, stabbing in the crook of my right elbow. I cursed. I yelled it. Loudly. The male ER nurse moved to the left elbow, this time with ultrasound. I prayed. I prayed and prayed, more fervently than ever before, for a successful IV. Somehow, by miracle only, there it was and then another. And we moved on to the ultrasound.
The vaginal ultrasound from someplace deeper and darker than hell. I was that person screaming in the ER—that person you see on those doctor dramas on NBC or TNT or USA or TLC or wherever. I was her. And the ultrasound tech lady shook her head and tried her best to hurry, but there was "oh! so much fluid." So much blood.

By the time they were wheeling me to the OR for surgery I was grateful to go. They made me repeat back to them my situation, to be sure I understood and was aware. Oh. I was aware. I ached for the sweet relief of anesthesia. We winded down hallways and there were faces and arms and ceiling tiles and faces and Jason "I love you so much, Sweetheart. Everything will be ok. Ok? You're going to be just fine. I love you." and then there were stained–glass tree branches and sky above me. Under any other circumstance it might have been pretty, but I hated that stained glass. It was an impostor in this clinical place. I wanted to throw up. So nauseous.
Double doors opened and a wall of stainless steel whirled in sight. A long stripe of shining, metal tools. I consciously looked away and tried to blink back that vision. Focus on anything else. Focus on the gentle cadence of the doctor's voice. He was older, gray. There was a confident calm about him. I decided I liked him. I needed to like him. More people were in the room. I realized I'd long since been stripped of all clothing and my green blanket. I guess I didn't need my sweater, I thought. I was laying on a table. I was naked, and I didn't care.

Then there was nothing. I woke in a hospital room feeling that much time had passed, not knowing where it went.

I don't remember very much of the hospital stay. I do remember Jason, overwhelmed by stress, trying to find a way to get back to the school to study/finish finals and at the same time not leave me alone at the hospital. I was helpless. I needed someone to hold a styrofoam cup in front of me to drink because I physically could not move. I remember several sweet friends who quietly sat beside me, holding cups and straws near my inclined head.
I remember the first night, pulling my heavy eyes open—seeing my friend Aubrey sitting at my side, bent over herself, head in hands, and shaking. Ohh, she's sad. She's crying. She must know... I lost the baby. And I felt her love and if I hadn't been fully depleted of energy I might have cried too. And I fell asleep.
There was also Naarah, who spent the night on an awful chair/bed, to whom I slurred about having more sleepovers and watching Duck Soup and giving me a round of applause should I be able to pass gas.
And more sweet friends and flowers. My little room became a garden.

It's blurry, most of it.

My mom came, I got to go home, more flowers, so much love, so many meals and letters and care packages from family and people around us, from my sweet young women, from people who knew.

I'm not sure why this happened—I am sure it wasn't coincidence (an ectopic pregnancy through IVF is like one in thirty–thousand, an ectopic pregnancy placed where mine was—where it could stay longer and grow bigger and cause the most destruction, was even smaller odds). I am sure of the miracles we found on our right and on our left—Jason's phone was on, he was able to come to me when I had a matter of hours to live, his thoughts were clear and movements sure, the EMTs were there in no time at all and were able to call it what it was from the start, Brad (Jason's dad) happened to be in the area and met him at the ER to take care of paperwork so Jas could take care of me, the kindest, most capable OBGYN was at the hospital and ready to perform the surgery, and I lived. I lived.

I'm not sure why this happened—maybe someday I'll understand a little better, but I'm so grateful for the angels that were placed in our path, the outpouring of prayers and love.


After the dust cleared, after a few more complications, and finally, finally, a bowel movement, a different pain settled upon me. An internal pain, a dark sadness, a debilitating anxiety. I waited for night to walk outside. I couldn't look at my phone, I tried to hide it away from me. I was afraid of social interaction, afraid of having to try—I was too exhausted to try to be chipper or to explain how I felt. It was all so uncomfortable. It was like I swallowed a tea kettle. All tight and compressed. All gasping for breath through the tiniest of air holes, and only able to let out a high whistle. There was this yearning, this need, to write it down before the insurmountable pressure blew the lid off the kettle and bursted open my stomach, as well as my heart.

I guess with trauma commonly comes depression and anxiety also. It came. It tackled me to the floor and sat on my chest. There was a black hole where a baby used to be, it seemed all hope and light had been swallowed up in it as well. I wept for empty arms and empty promise and a thick–ropey incision at the base of my stomach.

I tried to get back to life. It was so hard. Laden with almost crippling anxiety and marinated with sadness. I meditated. I prayed. I tried to use my phone again. I read the Book of Mormon as if my life depended on it. I counseled. I sought refuge on the sand at the beach or high on mountain tops. I talked with friends. I tried to take pictures again, I tried to enjoy it. I tried to move on. I tried to try.
A friend told me about her time with depression and anxiety, how all she could do was lay on the couch and cry daily, sometimes unable to attend her classes. Then, she said, there seemed to be a glimpse of happiness, then a window... after more time there became a door... then, almost without her noticing the walls holding her hostage were lifted. Sometimes there would be regression, but only for a time, and it grew shorter and shorter and farther between. Until one day it was ok. She was ok. And, after much more time, and yet almost as if suddenly, she realized she was whole.

By the end of April I was catching glimpses of my window. By the end of May I had found my door, and I could smile again, even laugh, not always—but I knew I could, it was a possibility.

Now there is still anxiety. I'm still a little socially frightened and awkward, but I feel more myself. I'm getting stronger and more capable. The panic attacks have dissipated and the sadness has seeped away for the most part.
There's still the racing heart and self–doubt. But there is also hope. My caving–walls seem to have lifted, and the steps back seem to be much shorter and farther between.
After more time I'll probably be whole. Different. But whole.

And we'll try again. We have three beautiful embryos all frosty and waiting (that was the best part, remember? Our three tiny miracles in a petri dish).

When it's time, we'll try again.

How have we been? How are we doing? Do you really want to know? It's kind of a long story...

"We're doing fine. Jas has been so healthy, healthier than ever. We've been so blessed, really. I'm alright too."



I listened to this song on repeat as I lay in bed recovering: Been a Long Day by Rosi Golan
because in case you wanted to know... and I like it

9/27/2012

"And now you know the rest of the story" said Paul Harvey

Aug 12, 2012
We had been in Durham, NC for three Sundays and our ward had been nothing short of amazing to us—welcoming us to the area before we even arrived and searching for ways to serve and befriend us the minute we came into town. Moving to, literally, the other side of the country was scary and hard (yes, we've been over this before) but finding such good people waiting for us made all the difference. Anyway, it was Sunday, we were at church, and a clipboard was passed around the Relief Society room for the annual Pig Pickin on Sep 15 (apparently this is an annual thing for a lot of people in North Carolina). What's a Pig Pickin? I didn't get a chance to ask, but I saw a blank beneath Baked Beans.
Ehh. It's in the middle of September. Jas will probably be in the hospital and I'll probably just have to call and say I won't be coming after all. And if not... I like Baked Beans. I'll get my mom's recipe.
I signed up.

Aug 28, 2012

Jason was notified that he was officially listed for transplant (you can read about that here).
That night I gave Jason a card with a love note inside.
When I saw this card I was struck by the symbolism of the phrase. It has since become our little family motto of sorts. "I love you to the moon and back."
We were informed that it wouldn't "be long at all". So we told our family and Jason's parents came the next day. After a week of waiting Brad (Jason's dad) went back to Idaho to work and Tami (Jason's mom) stayed with us in anticipation for the transplant.

Sept 11, 2012

It was in the afternoon and I was drying off from a nice, warm shower. There was a rap rap rap on the door and Tami's voice, "Geri, Jason's on the phone... It kind of sounds like it might be the call?" I finished drying and walked out of the bathroom to see Jas sitting on the sofa. This didn't seem like a normal "call" conversation.
Jason hung up the phone. It was a nurse wondering if Jason would want to participate in a study. There was a lot of "lung action" happening, so he would come to our apartment for Jason to sign papers as soon as possible. Once we had digested this news I realized I had been standing in the middle of the living room in my towel.
I put on some acceptable clothing. The nice nurse man came, said he wouldn't be surprised if we got a call later that afternoon or possibly the following day. Jason asked for the date as he signed the paperwork. "September eleventh," the nurse man said.
I gasped, rather loudly. "Oh. Sorry, it's just... that... I didn't realize... Interesting day."
For some reason I really didn't feel ok about a surgery on that date.
I shook it off and put on mascara.

Sept 12, 2012

There was an incessant noise interrupting my dreaming... a digital singing. It sounded like Apple's ringtone. The phone! It's the phone! What time is it? 250 am. 250 AM! I shook Jas, tapped his shoulder, "The phone! Get the phone!" He picked it up with a groggy hello, said some single or double syllable words kind of like: "Ok. Yes. Ok. I will. Ok. Thanks. Bye." We sat there for about four seconds.... Was this it?
We scrambled up to get ourselves together and shake off the sleep. I woke Tami (Jason's mom) and called my mom to let her know we were headed to the hospital.
The getting to the hospital is a blur of red stoplights and valet parking at the ER and a maze of hospital hallways. Once we got into the little room it was 315 AM and the prepping began. In between nurses and tests we dozed and "slept" in a very small, very chilly short stay room. 700 AM we still hadn't heard from the surgeon, after a very long night. Should I text Leah or Amy or Lindsay to let them know we were at the hospital and wouldn't be at the Pig Pickin Saturday? 755 AM we received another call. The surgeon, who was at the donor's OR, after testing and viewing the lungs had determined them not viable for transplant—the lungs were not good enough.
Dry run.
900 AM go home, go about your day as usual, try to take a nap and hope to get a call again soon.
Nobody passed out or had a panic attack... so I'd say that was a win.

Sept 15, 2012

Baked Bean aroma filled the apartment.
Nobody was in the hospital today, looked like we were headed to a Pig Pickin.
When we arrived I was much relieved to not see a rotating pig on a spit or one laid out on a table (I asked a checkout guy at Target and he filled me in on the tradition). Somebody told us this was "not a real Pig Pickin. Hopefully next year you'll get to see the real deal." I said "Yeeks." But the bbq sauce was fantastic.
There were lots and lots of questions about transplant stuff. When will it be? We don't know. How long do you have to wait? The average is 17 days, but probably longer, or maybe a little less... we don't know. How long will he have to be in the hospital after the surgery? Depends on the patient and how he does, we don't know.
There's not a lot to know in this game. Sorry. But thanks for playing.

Sept 16, 2012

We were almost finished getting ready for church at about 1:30 that Sunday afternoon. I heard a phone ringing, it wasn't mine. "Hey Jas! You're phone is ringing!" I found it on the table in the living room, caller ID said Unknown. Hmm.
Jason answered it. After only a moment I could tell this was another call.
They told us that the surgeon would be going to the donor's OR shortly, there was another transplant in progress at that moment (I guess these transplant things run in multiples), if Jason could get to the hospital within the next hour or two they would start preparing for transplant. Yeah yeah... we knew the drill.
I finished curling my hair. Jas took a bath. Tami packed us a sack of fruit and snacks. We all changed out of our church clothes and Tami and I put on our Team Jason shirts. We loaded our bags a second time and got in the car.
Once we got to the pre-op room we looked at the clock. 3:15 PM. Weird. The last time we were in a prep room I swear the clock said the same thing. We made ourselves at home with some Phase 10 and college football games. The clock kept ticking along. Jason filled out his Living Will (which I strongly suggest anyone going through a large surgery to do prior to the actual event). And there was more waiting. By midnight we had watched a few episodes of Storage Wars and were a little bit sick of waiting... At about 12:55 AM, in the middle of another episode of Storage Wars, Jason's phone rang.

The next part of this story will be told primarily with texts and FB updates—mostly because it's all a hazy blur for me now.


Text to family: Sep 16, 1:37 PM

We got a call so we'll head into the hosp in the next hr and we should know if the lungs are a go later tonight.... So no announcements yet—we'll keep you posted :)

Text to family: Sep 17, 1:00 AM

Just got the call from the nurse coordinator The lungs look good. It's a go! The nurse will come get him in a bit.

Instagram: @geriegbert

Jas is getting lungs tonight. And oh my racing heart... I love this guy. He's my favorite person.

FB update: Sep 17, 2:45 AM

Jas was just wheeled back to the OR. It will be avery long surgery (around 9 hrs)... We should get a couple updates throughout the wait.
>> as they wheeled him back on the bed all I could see was the top of his red hair and his hand from the wrist up as he waved and gave us a thumbs up. I knew his heart was anxious and racing, I knew he had to be terrified—but he was still my sweet buddy, being cute and funny as they took him back to the OR to begin something so huge... something we never could imagine actually happening. this shook me and I felt the room spinning and all I could hear was myself screaming inside my head. me and Tami hugged and cried for a minute, then ventured out into the waiting room.

Instagram: @geriegbert

So hosp lights never turn off. But I MacGyvered a magical floral hobo fort w the umbrella in my purse.
>> our friend Clark came to find Tami and I when he finished his shift that night (er morning?). he said he couldn't find us. I said, "Oh that's probably because I had a floral umbrella on my head." He said "I did see a floral umbrella... I didn't want to disturb whoever was under it." I don't know why, but this still strikes me as hysterical.

FB update: Sep 17, 9:33 AM

Update from Geri just now: Jas was wheeled back at about 230. They called me at 425 and said they had started the surgery. And just got an update from them "team is still working". So far so good! Keep on praying!
>> all of the updates were like this. I would get paged every two hours to go up to the nurse's desk and she would say, "You have a message from the OR." I would nod. "They are still working." The first time I didn't get it... I said "Ok, what's the message." "They're still working." "Ok, so what's the message?" "The message is: They are still working. That's the message." "Oh—ok." It was 6:30 AM after close to zero sleep and high stress—give me a break is all I'm saying.

FB update: Sep 17, 11:25 AM

Latest update: they are almost finished. Next update will be talking to the surgeon.

Photos taken during that last bit of waiting....

>> I believe I remember asking someone to pass me a Diet Coke. Wait. Yes. Yes I did. It was on Instagram/FB (and three days later the most awesome Relief Society President in the solar system brought us dinner... with a six pack of Coke Zero. Leah, if you're reading this, I heart you).

FB update: Sep 17, 12:18 PM

Update from Jason's sister: The surgery's done. His new lungs are in! Geri and my mom should be able to see him in the ICU in about 45 minutes!!!

FB update: Sep 17, 2:10 PM

Geri here: we just went into the ICU and saw Jas. He's still sedated and will be for about six more hrs. Not totally out of the woods yet... But the lungs are in and he looks pretty good to me. Should know more in a few hrs.
>> they tried to warn us before we went in there that he would be bare-chested, high temp, cold sweats and have a massive amounts of tubes coming from his body. Tami told me to picture the absolute worst in my mind so it could be better than that. I did, and therefore wasn't shocked at the sight. but it was still disturbing to see my man with tubes in the side of his neck, five tubes in his chest, tubes coming from the high upper thigh area (that part was covered, I saw them coming out from under the sheet), IVs in both hands, and a big one shoved down his throat. 

FB update: Sep 17, 9:41 PM

Geri again: We just left the hospital after seeing Jason. He looks so good and the nurses are excited that he is doing well. He is not so heavily sedated now, he is breathing on his own—once they get the epidural in for pain management they will be able to take out the ventilator and the central line. Hopefully by morning he will be sitting up in a chair and then up and taking a few steps. The sooner he walks the better.
So grateful for these lungs and watching his chest and belly rise and fall with a deep, full breath.
So grateful for a wonderful donor and fantastic surgical team.
So grateful for all of the encouragement, love and prayers—it has helped more than you know.
So relieved and can finally relax a little bit after a very stressful 32 hrs.

Sneaky ICU photo from Brad's phone via text: Sep 17, 11:00 PM


FB update: Sep 18, 12:34 PM

Jas is doing so great. His nurses are calling him their Rockstar. He's already walked a lot today and they're talking about moving him to the step down unit later this afternoon. Still so much recovery to go... But it's truly amazing he's doing so well up to this point.
>> I visited him in the ICU at about 9:15 that morning and by that time he had already walked 1500 feet. Everyone was doting on him and his dopey little self was sure enjoying it. When a new specialist would pop their head in the curtain and introduce themselves he would say "Hi I'm Jason and I'm doing really great! I just had a transplant yesterday." And they would smile and nod and say "Yes, I heard! You ARE doing great!"

FB update: Sep 18

Jas is out of ICU and in his room now. Doing miraculously well, super dopey from meds but super good. They did a bronch and said "the lungs look beautiful".

Text to family: Sep 19, 11:26 PM

Update is we walked like crazies today w/o any O2 (40 laps around the unit total). Got rid of 3 chest tubes (2 left). Brushed his teeth. Had a blood transfusion (the meds work on the bone marrow, so a transfusion every now and then is part of the deal). Cracked some jokes. Had a bronch, still looks good. Had a swallow test, passed the thick nectar drinks and the cookie—so now he can have thickened liquids (but no cookies cuz he didn't pass the pudding or the thin liquids). No diabetes so far. And now going to go to sleep.

FB update: Sep 20, 10:59 PM

Gerl here! Third day out of transplant was kind of hard, but he's still doing great. He can eat thickened liquids which makes this guy super happy (huge blessing). And he got the scary tube out of his neck, among a few other tubes in various places.... which is a plus :)
>>yeah, I spelled my name wrong. it had been a very long week. or a very long year.... either one.

FB update: Sep 22, 10:38 PM

Geri again: Just waiting on two chest tubes (there is still some fluid draining from the lungs) and we can break Jason out of the hospital! Plan is for Monday... but hospital plans almost always change. 
Jas has been recovering better than ever expected—today's PFT (pulmonary lung function test) was 67% (he was around 22% pre transplant) which is remarkable! And he walked 101 laps around the unit 

today (the prerequisite to going home is 20, 18 is a mile). He's sick of being in his room and antsy to move around... that means he's feeling pretty good and ready to get on out of here. Yay!

We really are seeing miracles everyday and so grateful for your support and prayers. Thank you again. And again and again.


Text to family: Sep 24, 4:48 PM

Outskies. He's doing good.

FB update: Sep 24

Jason is home tonight... and filling a giant pill box with new pills and not wearing any oxygen. Labs at 730 in the morning and back to rehab tomorrow afternoon. Lots of recovery to go. Bring it on!!

Instagram: @geriegbert

Look who's home!


..............................................................................................

Sep 27, 2012

We just got back from our evening walk and are about to turn on a movie, then we'll go to bed. No two hour breathing treatment needed. But not before a few more IVs and checking blood sugar and taking pills right on time and cleaning the cannonball wound. Every day seems to be a little better than the one before. We're planning on a few steps forward, a couple steps back.... But oh! How can it be? We thank our Father in Heaven every night for this blessing of life. We are so excited to no longer be waiting, but to be recovering and to live it.


"And now you know the rest of the story."


(If not familiar with him, or even if you are, here's a good Paul Harvey story.)